Hi everybody! I cannot believe that we are on the cusp of Labor Working day and summertime coming to a near. The final five to 6 months have been a total blur and this summer months, in individual, has flown by. There is been hospitals (chemo, stem mobile harvest, surgery), clinic appointments, and driving back again and forth to New York.
But, a single foot in front of the other and a single working day at a time, we are grateful to be heading into a new period with a robust boy and hearts full of hope.
Dominic had a chaotic first couple weeks of August…
🔍 First, he experienced a new set of scans (MRI + MIBG) as well as an additional bone marrow biopsy. The scans even now exhibit sickness through his bones but most of the spots are “dimmer” than prior to, and the bone marrow involvement diminished by around 50%.
So, there is still get the job done to do, but there is an improvement. And! Dominic did equally of the scans with out anesthesia (he has been sedated beforehand mainly because you have to lay absolutely even now and the MIBG is more than 2 hours). He’s a rock star.
🏥 Up coming, he experienced his very first round of immunotherapy. The antibody he’s supplied targets the protein of neuroblastoma cells and since they ordinarily sit on nerve cells, there is sizeable nerve discomfort accompanying the cure. The infusion is shorter (45 minutes) but extreme.
There is a great deal of pre-medication and suffering management for the duration of and after, and he would generally rest the overall relaxation of the working day afterward. But, the treatments are outpatient so no medical center stays, and they don’t impact counts like chemotherapy, so no neutropenia or blood or platelet transfusions.
🦸♂️ Then, he crossed off a different significant hurdle… radiation. He did this awake with no anesthesia as well… 2 times a day for five times, he was strapped down using a particular mask that was molded to his head and upper overall body to maintain his head and neck in the correct exact position just about every time (his clavicle was radiated owing to the cluster of diseased lymph nodes that have been there, as well as the tumor mattress in his stomach). An astounding lady who is effective there has the kids select what they want their masks to be and then customized paints them… Dominic selected Iron Male. There are some exceptionally distinctive persons in this globe.
He could also pick what ever new music he needed to be piped in every single time and chose Xmas music every day 💕🌲 He absolutely rocked it and the persons performing there had been unquestionably phenomenal.
➡️ Next… we get to be property for a few of months, then it is back again to NY for another spherical of immunotherapy, a new established of scans, and a different bone marrow biopsy.
📘 In the meantime, he started out kindergarten this week! He’ll be becoming a member of course nearly right until his oncologist provides him the go-in advance to attend in man or woman, which we’re hoping will be late September.
💈 His eyebrows, eyelashes, AND hair have all started out expanding back again! He’s had a ton of strength, has attained again all of the excess weight he missing after operation and that previous spherical of chemo and is otherwise doing definitely, actually well.
❤️ Thank you all for your continued prayers, it implies so considerably to our relatives.
In other news, I am organizing to get some e-mail scheduled out heading into the slide and vacation year to refresh some website content. So, you can glance ahead to me popping into your inbox additional on a regular basis in the coming months 🎉